Should Occupational Therapists be Care Co-Ordinators?

This question popped up on social media the other week.  Over all my time working in mental health I’ve often seen this debate going on, although it’s sometimes framed Generic Vs Specialist working. 

Intrusive advert: Keir provides supervision, consultancy, training & therapy via beamconsultancy.co.uk

For those outside of the UK, or those who haven’t had the pleasure of working in mental health, it’s probably worth exploring what care care coordination is. So in the uk, people with more complex mental heath problems are seen within secondary care.  This is likely to be a community mental health team.  If you are among the most complex of the most complex you will get a care coordinator.  The mental health charity Rethink say a care coordinator will:

Fully assess your needs:

Write a care plan which shows how your needs will be met

Regularly review your plan with you to check your progress

 

Your care coordinator should consider the following needs:

Your mental health needs

Medication and side effects

Employment, training or education

Personal circumstances including family and carers

Social needs

Physical health

Potential risk to yourself or others

Problems with drugs or alcohol

What you can probably add to the above list is going to safeguarding meetings, arranging reviews and professionals meetings, being the go to person when the person you work with is in crisis – which might involve getting extra services involved, arranging an admission or mental health act assessment or staying involved once someone is in hospital.  

I spent a fair few years being a care-coordinator for people.  Mostly in a CMHT, but also in Assertive Outreach and Early Intervention.  What I learned over time was that care coordination is boring.  Not all of it, the opportunity to build a relationship with someone over months or years was fantastic.  The filling out of forms was not.  The bureaucracy and associated paperwork is mind numbingly dull.  In all my time doing these forms no one was particularly interested in the quality of them, merely that they had been done.  And the pressure to fill them in was relentless.  Not only was there the need to complete an assessment and risk assessment and crisis plan almost within an hour of meeting someone, but these had to be updated and signed by the  client every time you did a review and every time there was an admission.  Unmet Need forms needed to be completed and it seemed that for anything to happen, there was a form that had to be filled out.  There were days that I filled in forms about people that I wasn’t seeing because I was filling in forms.  It felt pointless, an exercise in box ticking and (to steal a phrase from my old lecturer “As if the performance management aspect of the primary task had become the primary task itself”.  

In stark contrast to the organisational anxiety and zeal around the completion of forms was the total disinterest of those who were in the service looking for help.  This isn’t to say that they weren’t very concerned about the quality of what they were receiving, just that the filling out of forms was something that got in the way of the work, rather than made it better.  The only times care plans became important for those I worked with was when things had gone very badly wrong.  Obviously some sort of system is required to identify problems and how they will be addressed, but for me the entire system seemed set up to demonstrate that ‘something was being done’ often at the expense of anything being done at all.  

With the paperwork out of the way (it was never out of the way, it just went further away from the front of your mind for a bit) there came the real work of actually helping people.  This could be disrupted quite quickly.  A client in hospital appealing their detention?  A 2000 word report is required.  A phone call saying a relative is concerned?  You’re going to need to follow that up.  

All the above is what my nursing, social work colleagues and I did day in, day out.  They would also do periods of ‘duty’ where they would man a phone in the office and be the first port of call for anyone phoning the office.  My memory of the spectrum of calls involved everything from a man who wanted to die to a nun who was organising a coffee morning who wanted to know if one of our patients was allowed a cake.  It was chaotic, but it was enjoyable and rewarding.  

While I was working in the CMHT there was often a lot of pressure to work differently from the rest of the team.  Despite the fact that many of those in the service had been there for years and had histories crammed full of neglect, abandonment and abuse – the OT department were keen for all the work to be done in 12 weeks.  This could be anything – anxiety management, healthy eating, linking into voluntary work, supporting to return to education….all of these and more – as long as it could be done in 12 weeks.  If part of the reason that you were in the CMHT was that you had difficulty trusting others and believed that life would always be a shit as it had been – then that was you shut out from the 12 weeks of gold.  A ‘lack of motivation’ was something to be penalised for, rather than something to be curious about.  It seemed like there was a desire to provide a primary care service within secondary care for the noble reason of….I don’t know.  There seemed to be no sense to it at all.  

So there’s a view that when things are at their best, the work within mental health is structured, consistent and predictable.  OTs often want to work in this way as it’s often the time that you feel most confident in what you are offering and you see the most benefit to those you are working with.  The problem is that pretty much everyone wants to work in this way.   I’ve never seen a social worker turn cartwheels at the prospect of writing a mental health act report nor seen a delighted CPN cancelling a group because a patient hasn’t been seen for 3 days.  Few people relish doing duty.  But….somebody has to do these things.  Some of the jobs in the CMHT are boring, soul destroying and take you away from what you’d rather do.  The question I always consider is why these relatively less rewarding jobs should be the domain of ‘others’.  I know a lot of OT’s who would say that arranging a mental health act assessment isn’t the role of an OT – and maybe it isn’t, but it isn’t the role of a nurse or social worker either.  

I have 2 concerns:

Concern the first

If we are precious about the work that we do, if we see ourselves as massively different to the rest of the CMHT I worry that we argue ourselves into being less useful than the rest of the team.  Teams will advertise for generic posts that are nurses or social workers while we exclude ourselves from opportunities to show our value.  I was in a meeting once where an OT was complaining about psychiatrists wanting people to come to them rather than going to where the others were – “It’s as if their time is more valuable than hours”.  I wanted to feed him his payslip.  OTs bring a unique contribution to the MDT but it isn’t worth any more or less than our nursing and social work colleagues.  Let’s be team players and get dirty with the rest of the gang.  

Concern the second

I work with people who are often dangerous to themselves.  At one point I think I did this quite badly but after years of duty, crisis management, supervision and time with Lived Experience Practitioners I’m now seen as someone to look to for advice and support when working with people who might die.  I’m going to suggest that this is relatively rare for an OT and I really don’t think it should be.  Not knowing who is going to come through the door is exciting.  Talking through difficulties with those who are suicidal is rewarding.  In the past my OT managers actively steered me away from doing duty and responding to whatever problem someone had at that time.  They encouraged me not to work with people who were chaotic and they gave me the message that anyone living with high risk was the domain of some other discipline.  Had I listened I could now be in a place where I worked in a CMHT with a sense that self harm, suicidality and acute mental health crisis is someone else’s job – which would be ridiculous as that seems to be the majority of the work of the CMHT.  We do ourselves no favours at all when we refuse to develop skills in some of the most pressing problems of mental health.  

In a perfect world the bureaucracy of care coordination would be minimised and we would all do the therapeutic work that we wanted.  In an imperfect world we need to help out with the work that our colleagues resent just as much as we do.  Don’t be an OT that doesn’t help the team.  Don’t be an OT who disappears when things get tough.  Consistency and reliability doesn’t always mean being in a room on time for people planning on how to hold things together.  It might mean being round their house while their world falls apart.  

Keir provides supervision, consultancy, training & therapy via beamconsultancy.co.uk

 

Many thanks to Hollie @hoppypelican, Leanne Algeo @luvlea85, Sophie and Amy Boot @amyelizaharriet for kindly looking over the drafts of this blog and giving some useful feedback.  Any errors, typos and bizarre ideas are entirely mine.  If anything is coherent or makes a modicum of sense that is purely down to them.

My “Mental Health” Problems

Normally I write about important issues i feel passionate about. This time I’m writing about something that in the greater scheme of things is absolutely meaningless, but seems to annoy me intensely. If you’ve followed me on twitter (@keirwales), you’ll have seen me banging on about people saying “Mental Health”, when what they mean is “the absence of mental health”. When people are using words to mean the opposite of what they are supposed to, it’s interesting to think about why. It’s also interesting to think about why it annoys me so much. I know I love words, and I know I use them a lot. Normally a bit of experimentation with the language doesn’t bother me too much but every time I hear someone refer to mental illness as mental health, it’s like my brain is being scoured by a scrubbing brush.
I first heard the use of the term about 4 years ago. I was working with someone in a community mental health team (CMHT) and they would regularly tell me how they had mental health, their family didn’t understand mental health and the bizarre things that happened at night which meant the police came round were again, because of mental health. I managed to let this go and think little of it, but since then I keep hearing people saying the same thing. I hear them not just in the clinics and the waiting rooms, but also on Radio 4 who I see as guardians of the English language.
Let s have a look at what Health means –

“the state of being free from illness or injury”

This is what comes up first. Here we see that health is a positive term. Specifically, it implies the absence of illness. Therefore health is the top of the ladder and things can only go down from there. “Aha!“ you may argue “But health is a spectrum. We all have health to some degree”. Well possibly, but I don’t think anyone* ever uses the word health to imply anything other than robust and hearty vigor. You might ask someone “How is your health?” but by this you tend to mean “Have you been ill?”. Lets have a look at some examples:
Most recently Theresa May was on Radio 4 talking about “the injustice and stigma associated with mental health.” Now this is obviously a ludicrous statement as people with health don’t face any injustice or stigma at all. Those with mental illness, mental disorder or mental health problems face bucket loads of both and its in this direction Mrs May needs to be looking.  Which she is.  She just said the opposite of what she meant.
Its not just prime ministers who make this mistake. Prince Harry said in January “In the past, the phrase ‘mental health’ would be translated as mental illness”. Obviously not in the dim and distant past because 6 months later in July he said “Anyone can suffer from mental health”. Again, this is just bobbins. No one suffers from health. People suffer from the absence of health.
As a third and final example lets call in the police. In August last year when a man was running around London stabbing people with a knife the police announced that “Mental health was a significant factor”. What would he have done if he didn’t have such health? Once more what they meant was “The absence of mental health was a factor”.

While all the above is a bit silly, (terrorism aside) it is interesting that Mental Health, despite Harry’s best efforts, is being used to imply illness. What is it about the word ‘mental’ that has this power? Health is associated with athletes and fitness gurus, but Mental Health is a reason to assault people. Health is something you can rest assured you have – “At least I’ve got my health” – but mental health is something to be suffered. People with health can lead active fulfilling lives while those with mental health suffer stigma and injustice. We need to stop using the words mental health when we mean the opposite.
One of the reasons I think this is important is that there’s a load of people bobbing around talking about how ‘we all have mental health’. We really don’t. The guy locked on the ward crying as he’s tortured by his paranoia does not have mental health at all. While I applaud people like Harry and Dr Llan Ben-Zion for their efforts to get mental illness and mental heath problems talked about more, the repetition of “I have mental health” reads to me as a bit boastful. I don’t want everyone to talk about how they have health, I want people to talk about how they’ve had problems, issues, breakdowns and worries. “I went to the GP because I was struggling” “I’ve been depressed” “I thought about killing myself” – These are the conversations that reduce stigma. These are the conversations where we feel accepted. These are the conversations that save lives.
1 in 4 people will have some form of mental health problem in their lives. I’ve had pills from the Dr and sat with a counsellor twice in my life. I can absolutely assure you that during these times “I have mental health” was the furthest thing from my mind. I had issues. Worse than issues, I had problems. The stigma around mental health problems is bad enough as it is without us twisting and tearing our language to sidestep around it. Lets speak plainly and if you really want to challenge some stigma, next time someone tells you they have mental health, tell them about the problems you’ve had with yours.

Keir provides training, consultancy and therapy to help people and organisations manage complex mental health problems at Beamconsultancy.co.uk

 

*anyone, apart from the people who get this wrong.